Meet Noor!
Meet 12-year-old Noor! She is a lively little girl facing the challenges of a rare progressive disorder, Fibrodysplagia Ossificans Progessiva. This is a rare condition in which muscle tissue and connective tissue are ossified into bone over time. Noor and her family are hopeful to find a cure for her condition! In order to achieve this goal, the family must attend clinical trials that are out of state!
Despite Noor’s medical condition, she has a few unique interests! She has a passion for reading, her favorite genres to read are mystery and non-fiction. When she’s not reading, she enjoys making crochet animals for others! It’s a good way to encourage finger mobility while bringing others joy at the same time. She has a goal to one day turn it into a business of her own!
Noor needs a Convaid Rodeo Medical Wheelchair (Tilt in Space). This piece of equipment will ensure proper, comfortable positioning off boney prominences! Please be here sponsor!