Meet Ellia!
Meet 2-year-old Ellia! Ellia is a joyful and determined girl who brings so much happiness to everyone around her. Ellia lives with Aicardi syndrome, a rare condition characterized by underdeveloped tissue connecting the two halves of the brain, as well as seizures. True to her motivated nature, she faces every day with incredible strength and a big smile.
Ellia is captivated by the magic of Princess Tiana, the energy of Kpop Demon Hunters, and regular trips to the beach and zoo. Winding down at night is reserved for cozy story time with her dad and reading The Gruffalo. Energetic and full of anticipation, she is currently counting down the days until a special date to a Capybara café with her mom.
To help her safely enjoy her favorite outdoor activities, Ellia’s family is hoping to acquire a Go-To Seat. While she absolutely loves the water, her medical stroller cannot get wet, which limits her fun at the splash pad and beach. A portable Go-To Seat will give Ellia the specialized seating support she needs to sit and play safely in the water, allowing her to join in on the splashes without the risk of damaging her everyday means of mobility. Please consider sponsoring her today!