Meet Everett! Everett is six years old and loves going on walks with his mom and watching Coco Melon. He loves playing with his siblings and going to the pool to swim. His mom describes him as funny, smart, and loving.

Everett was born with Polyhydramnios, Megalencephaly, and Symptomatic Epilepsy (PMSE), which is a rare genetic disorder that affects the brain and causes seizures. It is also known as Pretzel Syndrome. Everett was diagnosed four weeks before his birth.

Thanks to the incredible generosity of Shirakiku, Everett now has the much-needed activity chair he deserves!
When Everett’s mom reached out to W4K, she shared how he had outgrown his old chair — one that had been so important in giving him the support he needed for eating and taking his medications.
Because of this gift, Everett can continue to grow, thrive, and be comfortable each day. Thank you for making a real difference in his life!