Meet Rylie!
Meet 8-year-old Rylie, known by her friends and family as RK. Rylie is a brave young lady who has a rare genetic disorder called Type II Pfeiffer syndrome. She has craniosynostosis known as Cloverleaf skull, which is a rare syndrome causing a malformation of her skull. She had to have a cranium surgery at only 3 days old. In addition, her elbows are fused at 20 degrees. She is unable to walk unassisted and has had to endure multiple surgeries, yet she always manages to remain calm and joyful.
Rylie is a bright child whose interests include painting, building with LEGOs, and collecting American Girl dolls. She also enjoys listening to the inspirational songs of Lauren Daigle. Rylie is also a fan of the Miami Dolphins football team. Rylie’s lively personality makes it easy for all who meet to her to be instantly dazzled by her selflessness. She always puts others before herself!
Rylie is in need of a gait trainer to help her be able improve her balance, posture, and endurance. Please be her sponsor!