Meet Sumayah!
Meet 12-year-old Sumayah! Sumayah was diagnosed with a rare genetic disorder known as infantile neuroaxonal dystrophy, which affects her nervous system. She is fully dependent on others for all daily living activities. She uses a stander at home to help keep her in an upright position.
Despite Sumayah’s struggles, she has a few fun interests. Sumayah is a book worm and her favorite series is Lemony Snicket’s A Series of Unfortunate events, as well as mystery novels. She also enjoys visiting her favorite accessible theme park, Morgan’s Wonderland. Although she is non-verbal, she is able to communicate through her smile and body language. Sumayah’s sweet demeanor shines through and through- she is patient with the world around her, and despite her many trials, she never gives up!
Sumayah is in need of a bathroom modification. Her bathroom is not accessible, and as she grows it has become harder for her parents to bathe her. Please be her sponsor!